We spoke with the doctors at Boston Medical Center Friday night and it has been confirmed; George does have primary cardiac amyloid.
So what do we do now? This week the focus will be putting together a calendar for the treatment plan; based on tonight’s conversation, the treatments may start as early as the week after Thanksgiving. As soon as the calendar has been finalized, I’ll send out a copy. Hopefully there will be one day that Tom can come into the hospital with us – he’s very curious about the treatment rooms and where his Dad will be “fixed” and I think he’s heard that there’s new vending machines in that building….
What can we anticipate over the next months? First, it will be really, really bad. Then it will just be really bad. After that, plain old bad and then, the sky turns blue and flowers blossom and things will be start to be wonderful again. So, we will have a dark winter but it will turn into a beautiful spring.
We have been overwhelmed with offers to help in any way. Well, now’s your chance!! George will need distractions during the treatment and recovery. Books on cd would be wonderful! If you have any that you are done with, I know that George would enjoy the diversion.
Let’s pause for a moment and remember all the positive things – we have a diagnosis, there’s a treatment plan, we live in the best location to be sick and we have all of your support. Knowing that all of you are praying for George’s health is such a gift. However, if you would like to send me chocolate, that would be a nice gift too.
radiate harmony 