You know that saying, “it’s not the heat, it’s the humidity”? It is the same with chemotherapy. It’s not the chemo, it’s the recovery!
The first days of this past week were spent at the lovely Amyloid Inn. We had a cozy room on the fourth floor overlooking Morrissey Blvd. The elevator was probably the most interesting thing about the Inn – it’s doors opened and closed violently and when you got to your floor, it was like a 747 landing at Logan. The folks running the Inn couldn’t have been nicer. We met another family (a Mom and son from Ohio – Columbus) – the son, Jamie, who is in his mid-thirties, has amyloid in his kidneys. They were here in December for three weeks and returned the beginning of January and won’t be going home until the start of March. Again, we are reminded of how lucky we are to be so close to such wonderful medical teams.
The days passed in a solid routine – the mornings were spent at the Amyloid Clinic and the afternoons I would watch George sleep and work on my wonderful laptop. OK parents! remember those newborn days when you kept checking – are they breathing? are they ok? This was the afternoon and night at the Inn. Because of the risk of infection, we were in quarantine – anytime we left the room, George needed to wear a mask. People offer up some interesting looks to the masked man. At least kids are honest in their stares…
Not unexpected, but always a surprise, George was admitted to Boston Medical for the weekend. His white blood counts have hit rock bottom (which means only one direction to go! UP!!) and his medical team felt it was prudent to have him stay as their guest. Most likely, he will be released on Sunday or Monday and am hoping that he can come home. George’s room has a great nighttime view of Boston – the Prudential Center, State Street Bank and it’s a full moon! During the day, construction abounds in South Boston – you can look in any direction and see projects from a rooftop deck to a new building start.
George is exhausted but still keeps a positive strength. I know that the strength is fed from your prayers.
thank you!
~Jayne
ps – wondering about the car left running? no dead bodies as I had suspected, but a couple who had a little too much to drink and managed to make it to their room but forgot a tiny detail.
radiate harmony 